-This flare is kicking my butt. It’s almost like I am back to square one. Temperature control issues, night sweats, the shakes, lumpy elephant skin, itching out of control, cracked, oozing skin especially on hands and feet. If I succumb to the itch and scratch even in one spot my entire body becomes wet. I am back to taking baths and back on Ambien. I am eating everything in sight, primarily as a distraction, yet have lost some of the weight I had gained back. The hydroxyzine doesn’t seem to be working as well as it was, so I have been trying other things such as naproxen. I am missing a lot of work.
My hopes on getting to Seattle soon does not look good, and that is the hardest thing of all.
The Ambien works well. I am hoping getting some sleep will help turn this around. Hair has stopped falling out. I am enjoying watching the Olympics.
I am trying to keep a positive attitude, but damn, this really sucks. The encouraging posts on the ITSAN forum from veterans that have made it through TSW have really helped to keep my sanity.
I am trying far less moisturizer this time around to see how it goes. The only thing I have been putting on is Eczemin Cream, and only when I have a bad itch. It seems to work as well as Allegra cream, but instead of antihistamines it contains the anesthetic pramoxine.
In researching UV-B narrow band light therapy, I think I want to give it a try. I found a really good deal on a nearly new 6 foot, 6 bulb unit for home use for around a grand, but I am having trouble getting ahold of my dermatologist. The machines have an interlock that requires a digital prescription key, so I need my dermatologist to prescribe it. She did want me to try it a few months back, but my insurance rejected it. Going in to an office for treatments would be a royal hassle, and a home unit would pay for itself after a few months, especially if I do not have insurance coverage.