I'm approaching my 5 year anniversary and I've been hanging on to feeling good and enjoying it every day but I have had a nagging feeling that another flare was going to happen. Maybe because of the heat, I dunno, but every year right about now it has happened, and it is happening again. Damn it.
It's a little different this time in that it came on quickly. In just a couple days the hands got significantly worse, the neck broke out, the creepy crawly feelings are back, and I am having trouble sleeping. Nothing terrible yet, so I am hoping that it will be mild and short lived.
I was really hoping to take Robin to Disneyland this August and I am still making plans, TSW be damned. My daughter is a photographer at Disneyland and the last time I was there was about 6 years ago with her and her twin sister. Robin has never been to a Disney anything, and I am hoping she will love it as much as I have virtually my entire life. It will be especially sweet because my other twin daughter will be visiting from Australia.
While there, I am tempted to make an appointment with Dr. Rapaport, the Beverly Hills dermatologist who pioneered Topical Steroid Withdrawal, just to give him a hug. It was his work at UCLA that shed light on Red Skin Syndrome and made millions aware of the dangers of topical steroids. He co-founded ITSAN, the organization that helped me so much through the bad times. Dr. Rapaport and ITSAN have unfortunately parted ways, but I still love them both.
